What is ICPF?
The International Cleft lip and Palate Foundation is a multi disciplinary humanitarian foundation devoted to cleft lip and palate patients. It was established on October 23 1997, at KYOTO with more than twenty countries participating.
Wha are the goals of ICPF?
- To advance the care for cleft lip and palate patients, worldwide.
- To strengthen care activity in cleft lip and palate treatment through volunteer activity, charity missions and fund raising.
- To hold a multi -disciplinary international congress in order to facilitate mutual understanding.
- To establish a network system of information exchange, regardless of fields and organization.
Why was the ICPF established?
- No such organization currently exists.
- CLP is the most common congenital anomaly in humans and therefore merits special and particular attention for voluntary activity.
- A multi-disciplinary foundation will permit membership to surgeons, orthodontists, speech patholgists, geneticist, pediatricians, anesthesiologists, prosthodontists,and most importantly patients and family members of patients. This kind of very broad membership base is not possible in a professional specialty association.
为有效规范和提高我国的唇腭裂治疗水平，加强国际间的交流与合作，经中华口腔医学会常务理事会审议批准,于2014年4月正式在中华口腔医学会架构下成立了全国性唇腭裂治疗专业组织——中国唇腭裂诊治联盟（Sinocleft）。中国唇腭裂诊治联盟是一非赢利性学术组织，整合国内包括口腔颌面外科、整形外科、正畸、语音、心理等多学科在内的从事唇腭裂治疗的主要医疗资源，依托全国范围内达到一定规模和水准的唇腭裂中心，形成唇腭裂诊疗及研究协作体。具体联盟组织目标包括设立唇腭裂治疗团队建设和管理原则，规范唇腭裂序列治疗模式、治疗效果的评估方法和评估标准，建立并使用统一的病案资料采集和病例追踪数据收集的模式，创立共享在线唇腭裂患者数据库，组织并实施大样本的临床与基础的合作研究，同时积极发展并形成国内高水准的唇腭裂治疗网络，促进国家政府出台更优化的唇腭裂医疗政策，力争为中国所有唇腭裂患者提供高质量的、便捷的医疗服务，最终引领中国的整体唇腭裂治疗逐步达到国际一流水平。目前中国唇腭裂诊治联盟共有单位成员70名，基本涵盖了国内顶级唇腭裂专业治疗团队。
嫣然天使基金作为国内最具影响力的专注于唇腭裂救助的专项公益基金，作为联盟的合作伙伴，为联盟开展工作提供长期持续的资金支持、行政协助和品牌推广，共同推进我国唇腭裂领域发展。